govt.fyi
NY State Legislature · A7845-2025 · Signed by Governor

Relates to establishing a state amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) registry

Introduced
Moved
Reached a final decision
Became law
Derived from the official record below.

Officially: “Relates to establishing a state amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) registry Read the full text

Assembly

What it does

Requires the department of health to establish a registry for the collection of information on the incidence and prevalence of amyotrophic lateral sclerosis (ALS) and motor neuron disease (MND) in the state; requires that every physician, nurse practitioner, physician assistant and general hospital that diagnoses or treats a patient diagnosed with ALS or MND give notice to the department of cases of ALS or MND coming under their care; requires that patients diagnosed with ALS or MND be provided with written and verbal notice regarding the collection of information and patient data on ALS and MND and provides a method for patients to opt out of the collection of data; provides for duties of the department and the commissioner of health in relation thereto.
Summary from the sponsor's memo in the official legislative record, shown verbatim. Not legal advice.

Where it is

Show all 16 actions
REFERRED TO HEALTH · Apr 11, 2025

Assembly

REPORTED REFERRED TO CODES · May 19, 2025

Assembly

REPORTED REFERRED TO WAYS AND MEANS · May 28, 2025

Assembly

REPORTED REFERRED TO RULES · May 29, 2025

Assembly

REPORTED · Jun 6, 2025

Assembly

RULES REPORT CAL.455 · Jun 6, 2025

Assembly

ORDERED TO THIRD READING RULES CAL.455 · Jun 6, 2025

Assembly

PASSED ASSEMBLY · Jun 6, 2025

Assembly

DELIVERED TO SENATE · Jun 6, 2025

Assembly

REFERRED TO RULES · Jun 6, 2025

Senate

SUBSTITUTED FOR S6413 · Jun 10, 2025

Senate

3RD READING CAL.1540 · Jun 10, 2025

Senate

PASSED SENATE · Jun 10, 2025

Senate

RETURNED TO ASSEMBLY · Jun 10, 2025

Senate

DELIVERED TO GOVERNOR · Oct 9, 2025

Assembly

SIGNED CHAP.478 · Oct 17, 2025

Assembly

The numbers

7
sponsors on the bill

Sponsors

Steve SternRebecca SeawrightMaryJane ShimskyHarvey EpsteinNader SayeghMicah LasherSteven Otis

Recorded votes

Recorded voteSenate · 2025-06-10 · EXC 5, AYE 58
Roll-call results shown verbatim from the New York legislature’s records. A result reflects that roll call’s own motion, not the bill’s overall outcome.

Who is lobbying on this

ALS United Greater New York, Inc.via THE PARKSIDE GROUP LLC
8 filings
HEALTHCARE ASSOCIATION OF NEW YORK STATE, INC.via HEALTHCARE ASSOCIATION OF NEW YORK STATE, INC.
1 filing
From 9 filings in New York State lobbying disclosures (COELIG), via data.ny.gov, naming this bill (2025 to 2026). Filings are self-reported by lobbying firms and show who is paid to influence this bill. They do not say which side, or whether it worked.
Nothing on this page shows why any vote was cast. Recorded votes and lobbying filings are separate official records, self-reported by different parties, and neither explains the other.
Every fact on this page links to its source, starting with the official bill record. Last action: Signed by Governor (Oct 17, 2025).