Relates to Down syndrome diagnosis awareness, the official text

S T A T E   O F   N E W   Y O R K
 ________________________________________________________________________
 
                                   1674
 
                        2025-2026 Regular Sessions
 
                           I N  A S S E M B L Y
 
                             January 10, 2025
                                ___________
 
 Introduced  by M. of A. McMAHON -- read once and referred to the Commit-
   tee on Health
 
 AN ACT to amend the public health law,  in  relation  to  Down  syndrome
   diagnosis awareness
 
   THE  PEOPLE OF THE STATE OF NEW YORK, REPRESENTED IN SENATE AND ASSEM-
 BLY, DO ENACT AS FOLLOWS:

   Section 1. Paragraph (h) of subdivision 1 of section 207 of the public
 health law, as added by a chapter of  the  laws  of  2024  amending  the
 public  health  law  relating  to  Down syndrome diagnosis awareness, as
 proposed in legislative bills numbers S. 593-A and A. 4138-A, is amended
 to read as follows:
   (h)(i) [A] Down  syndrome  [awareness  program  shall  be  created  to
 provide]  INCLUDING up-to-date and evidence-based information about Down
 syndrome, [in a written or alternative format to health  care  providers
 who  order  tests  for  a pregnant woman or an infant to screen for Down
 syndrome that shall include, but] not [be] limited to[,] the following:
   (1) expected physical, developmental,  educational,  and  psychosocial
 outcomes;
   (2) life expectancy;
   (3) the clinical course description;
   (4) expected intellectual and functional development;
   (5) available intervention or treatment options;
   (6) information hotlines specific to Down syndrome;
   (7) relevant resource centers or clearinghouses;
   (8) national and local Down syndrome organizations; and
   (9) any other information the department deems necessary.
   SUCH  INFORMATION SHALL BE PROVIDED ELECTRONICALLY THROUGH THE DEPART-
 MENT'S WEBSITE.
   (ii) The commissioner shall (1) examine and utilize existing practices
 to ensure that the information provided under subparagraph (i)  of  this
 paragraph  is  culturally and linguistically appropriate for all recipi-
 
  EXPLANATION--Matter in ITALICS (underscored) is new; matter in brackets
                       [ ] is old law to be omitted.
                                                            LBD02838-01-5
 A. 1674                             2
 
 ents; and  (2)  meet  [annually]  with  representatives  from  the  Down
 syndrome community AS NECESSARY to ensure such information is current.
   §  2.  Section  2 of a chapter of the laws of 2024 amending the public
 health law relating to Down syndrome diagnosis awareness, as proposed in
 legislative bills numbers S. 593-A and A. 4138-A, is amended to read  as
 follows:
   §  2.  This  act  shall  take  effect [immediately] ON THE ONE HUNDRED
 EIGHTIETH DAY AFTER IT SHALL HAVE BECOME A LAW.
   § 3.  This act shall take effect immediately; provided, however,  that
 section  one  of  this act shall take effect on the same date and in the
 same manner as a chapter of the laws of 2024 amending the public  health
 law relating to Down syndrome diagnosis awareness, as proposed in legis-
 lative bills numbers S. 593-A and A. 4138-A, takes effect.