SUDDEN DEATH IN EPILEPSY, the official text

SB2782 Enrolled                     LRB104 15930 AAS 29409 b

1   AN ACT concerning State government.

2   Be it enacted by the People of the State of Illinois,

3 represented in the General Assembly:

4   Section 5. The Department of Public Health Powers and

5 Duties Law of the Civil Administrative Code of Illinois is

6 amended by adding Section 2310-750 as follows:

7   (20 ILCS 2310/2310-750 new)

8   Sec. 2310-750. Sudden unexpected death in epilepsy.

9   (a) As used in this Section, "sudden unexpected death in

10 epilepsy" means sudden, unexpected death in a patient with

11 epilepsy, with or without evidence of a seizure.

12  (b) The Department shall undertake a public education

13 campaign to bring broad public awareness to communities across

14 this State of the risk of sudden unexpected death in epilepsy

15 that is focused on providing the public with:

16  (1) current and evidence-based information about

17  sudden unexpected death in epilepsy risk factors and

18  conditions reviewed and approved by one or more

19  professional not-for-profit organizations with expertise

20  in neurology and epilepsy; and

21  (2) contact information for nonprofit organizations

22  that provide information and support services for epilepsy

23  conditions.
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1   (c) The Department shall post the information listed in

2 subsection (a) on the Department's website, with the following

3 requirements:

4        (1) the Department shall ensure that the information

5   under this Section is culturally and linguistically

6   appropriate for all recipients;

7        (2) any local or national organization that provides

8   education or services related to epilepsy conditions may

9   request that the Department include on its website that

10  organization's informational material and contact

11  information; if the Department determines that the

12  organization's   informational   material,  contact

13  information, or both are necessary or appropriate under

14  this Section, the Department may include the

15  organization's   informational   material,  contact

16  information, or both on its website, in written

17  information provided under this subsection (c), or both;

18  and

19       (3) the Department shall, in consultation with local

20  and national organizations that provide education or

21  services related to epilepsy conditions, provide guidance

22  to health care practitioners in determining whether a

23  patient is at elevated risk for sudden unexpected death in

24  epilepsy, including, but not limited to, whether the

25  patient has had convulsive seizures, the frequency and

26  recency of such seizures, and whether the patient's
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1  symptoms have subsided in response to medicinal or

2  surgical treatment.

3  (d) The Department shall adopt rules implementing this

4 Section.