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Illinois General Assembly· HB 4665Governor Approved

CD CORR-REPORT HOSPICE CARE, the official text

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HB4665 Enrolled                     LRB104 17713 RLC 31144 b

1   AN ACT concerning criminal law.

2   Be it enacted by the People of the State of Illinois,

3 represented in the General Assembly:

4   Section 5. The Unified Code of Corrections is amended by

5 changing Section 3-2-15 as follows:

6   (730 ILCS 5/3-2-15)

7   Sec. 3-2-15. Department of Corrections; report of hospice

8 and palliative care for committed persons.

9   (a) Purposes. The General Assembly finds that:

10  (1) The United States prison population is aging

11  rapidly.

12  (2) Illinois' prison population is similarly aging

13  rapidly, with over 1,000 prisoners aged 65 or older.

14  (3) As a result of the aging prison population more

15  committed persons are in need of end-of-life care and

16  support services.

17  (4) The Department of Corrections has a policy on

18  end-of-life care, which provides, in part, that the goals

19  are: "safe, dignified and comfortable dying,

20  self-determined life closure and effective grieving".

21  (5) The Department of Corrections does not have a

22  formal hospice program; rather, end-of-life care is

23  provided on a prison-by-prison basis which results in
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1   inconsistent care for committed persons who have been

2   diagnosed with terminal illnesses or who are expected to

3   reach the end of their life.

4   (6) At some prisons, end-of-life care is at times

5   provided, in part, by other committed persons assigned as

6   aides.

7   (7) The Department of Corrections does not have

8   centralized or consistent data on the number of committed

9   persons receiving end-of-life care.

10  (8) The Department of Corrections does not have

11  centralized or consistent data on the number of prisoner

12  aides who are assigned to assist in providing end-of-life

13  care.

14  (9) The Department of Corrections does not currently

15  have a system for tracking patient outcomes or grievances

16  related to the quality of end-of-life care provided.

17  (10) Data on the end-of-life care provided in the

18  Department of Corrections is needed to give the General

19  Assembly and the public an understanding of the

20  Department's approach to end-of-life care for terminally

21  ill committed persons in its custody.

22  (11) Eddie Thomas was a committed person of the

23  Department of Corrections who died alone in the back of a

24  prison infirmary without any end-of-life care just 5

25  months after being diagnosed with late stage lung cancer.

26  (b) Definitions. In this Section:
    HB4665 Enrolled  -3-              LRB104 17713 RLC 31144 b

1   "Advance directive for health care" means written

2 instructions of the patient's wishes as to how future care

3 should be delivered or declined, including decisions that must

4 be made when the patient is not capable of expressing those

5 wishes. Advance directives may also appoint an agent with

6 power of attorney for health care.

7   "Department" means the Department of Corrections.

8   "Hospice and palliative care" means physical, social,

9 emotional, and spiritual support care for committed persons

10 who have been diagnosed with a known terminal condition with a

11 life expectancy of 6 months or less. This includes, but is not

12 limited to, assistance with activities of daily living and

13 comfort care.

14  "Peer support" refers to assistance and companionship

15 provided by committed persons who have been trained to offer

16 emotional, social, and practical support to fellow committed

17 persons receiving hospice and palliative care.

18  "Terminal condition" means an incurable or irreversible

19 condition that, without the administration of life-sustaining

20 procedures, will, according to reasonable medical judgment,

21 result in death within a relatively short period of time; or a

22 state of permanent unconsciousness from which, to a reasonable

23 degree of medical certainty, there can be no recovery.

24  (c) Reporting requirement. No later than December 1 of

25 each year, the Department shall prepare a report to be

26 published on its website that contains, at a minimum, the
    HB4665 Enrolled           -4-  LRB104 17713 RLC 31144 b

1 following information about hospice and palliative care in its

2 institutions and facilities during the prior fiscal year:

3   (1) demographic data of committed persons who received

4   hospice and palliative care, separated by the following

5   categories:

6   (A) race or ethnicity;

7   (B) gender;

8   (C) age;

9   (D) primary cause of terminal illness or

10  condition; and

11  (E) length of incarceration prior to receiving

12  end-of-life care;

13  (2) data on the number of committed persons in the

14  Department's hospice and palliative care programs,

15  including the following:

16  (A) the total number of committed persons enrolled

17  in the Department's hospice and palliative care

18  programs;

19  (B) the total number of admissions into and

20  discharges from the Department's hospice and

21  palliative care programs, including the number of

22  committed persons who died while in the program and

23  the number of committed persons who were removed from

24  the program for other reasons; and

25  (C) the number of committed persons denied entry

26  into the Department's hospice and palliative care
    HB4665 Enrolled  -5-            LRB104 17713 RLC 31144 b

1   programs, including any reasons that they were denied;

2   (3) data on the timing of hospice and palliative care

3   programming, including the following:

4   (A) the average length of time that committed

5   persons receive hospice and palliative care; and

6   (B) the average length of time between the

7   diagnosis of a terminal condition and admission into a

8   hospice and palliative care program;

9   (4) the number of committed persons in the custody of

10  the Department who died, separated by the following

11  categories:

12  (A) committed persons who died while receiving

13  hospice and palliative care; and

14  (B) committed persons who died without receiving

15  hospice and palliative care, and the number of such

16  committed persons who died as a result of natural,

17  accidental, suicidal, or homicidal causes;

18  (5) policies and administrative directives of each

19  Department institution and facility regarding the

20  institution of hospice and palliative care. This data

21  shall include the following information:

22  (A) the name of each institution and facility that

23  offers hospice and palliative care services;

24  (B) criteria to be eligible for hospice and

25  palliative care services, both Department-wide and at

26  each institution and facility;
    HB4665 Enrolled  -6-        LRB104 17713 RLC 31144 b

1   (C) a list of the types of hospice and palliative

2   care services that are offered in each institution and

3   facility. This list shall include, but is not limited

4   to, pain management, psychological counseling, peer

5   support, and chaplain services. If available, this

6   list shall also include supportive services offered to

7   family members of committed persons;

8   (D) the accreditation status of the Department's

9   hospice and palliative care programs, if available;

10  (E) the procedures for committed persons in the

11  Department's custody to request an advance directive

12  for health care in each institution and facility;

13  (F) the procedures for health care or legal staff

14  to assist committed persons in completing advance

15  directive instruments; and

16  (G) the procedures for health care providers to

17  implement advance directives for health care in each

18  institution and facility;

19  (6) the staff available for hospice and palliative

20  care. This data shall include the following:

21  (A) the number of specialized staff at each

22  institution and facility, including palliative care

23  physicians, nurses, and social workers;

24  (B) the number of volunteers dedicated to hospice

25  and palliative care, separated by the following

26  categories:
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1                    (i) volunteers who are committed persons of

2   the Department;

3                    (ii) volunteers who are not committed persons

4   of the Department; and

5                    (iii) the ratio between the number of staff

6   and the number of patients in the Department's

7   hospice and palliative care programs; and

8   (7) the cost of the Department's hospice and

9   palliative care programs, including the following:

10  (A) the annual costs associated with hospice and

11  palliative care across the Department;

12  (B) the sources of funding for hospice and

13  palliative care services; and

14  (C) the annual costs associated with hospice and

15  palliative care at each Department institution and

16  facility; and.

17  (8) the cost of the Department's end-of-life care for

18  committed persons who died of natural causes and were not

19  in hospice or palliative care programs.

20  All such data shall be anonymized to protect the privacy

21 of the committed persons involved in the hospice and

22 palliative care programs.

23 (Source: P.A. 104-220, eff. 1-1-26.)
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