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Illinois General Assembly· HB 2397Governor Approved

DOC-HOSPICE/PALLIATIVE CARE, the official text

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HB2397 Enrolled                     LRB104 08043 RLC 18089 b

1   AN ACT concerning criminal law.

2   Be it enacted by the People of the State of Illinois,

3 represented in the General Assembly:

4   Section 1. This Act may be referred to as the Eddie Thomas

5 Act.

6   Section 5. The Unified Code of Corrections is amended by

7 adding Section 3-2-15 as follows:

8   (730 ILCS 5/3-2-15 new)

9   Sec. 3-2-15. Department of Corrections; report of hospice

10 and palliative care for committed persons.

11  (a) Purposes. The General Assembly finds that:

12      (1) The United States prison population is aging

13  rapidly.

14      (2) Illinois' prison population is similarly aging

15  rapidly, with over 1,000 prisoners aged 65 or older.

16      (3) As a result of the aging prison population more

17  committed persons are in need of end-of-life care and

18  support services.

19      (4) The Department of Corrections has a policy on

20  end-of-life care, which provides, in part, that the goals

21  are: "safe, dignified and comfortable dying,

22  self-determined life closure and effective grieving".
    HB2397 Enrolled  -2-          LRB104 08043 RLC 18089 b

1   (5) The Department of Corrections does not have a

2   formal hospice program; rather, end-of-life care is

3   provided on a prison-by-prison basis which results in

4   inconsistent care for committed persons who have been

5   diagnosed with terminal illnesses or who are expected to

6   reach the end of their life.

7   (6) At some prisons, end-of-life care is at times

8   provided, in part, by other committed persons assigned as

9   aides.

10  (7) The Department of Corrections does not have

11  centralized or consistent data on the number of committed

12  persons receiving end-of-life care.

13  (8) The Department of Corrections does not have

14  centralized or consistent data on the number of prisoner

15  aides who are assigned to assist in providing end-of-life

16  care.

17  (9) The Department of Corrections does not currently

18  have a system for tracking patient outcomes or grievances

19  related to the quality of end-of-life care provided.

20  (10) Data on the end-of-life care provided in the

21  Department of Corrections is needed to give the General

22  Assembly and the public an understanding of the

23  Department's approach to end-of-life care for terminally

24  ill committed persons in its custody.

25  (11) Eddie Thomas was a committed person of the

26  Department of Corrections who died alone in the back of a
    HB2397 Enrolled  -3-               LRB104 08043 RLC 18089 b

1   prison infirmary without any end-of-life care just 5

2   months after being diagnosed with late stage lung cancer.

3   (b) Definitions. In this Section:

4   "Advance directive for health care" means written

5 instructions of the patient's wishes as to how future care

6 should be delivered or declined, including decisions that must

7 be made when the patient is not capable of expressing those

8 wishes. Advance directives may also appoint an agent with

9 power of attorney for health care.

10  "Department" means the Department of Corrections.

11  "Hospice and palliative care" means physical, social,

12 emotional, and spiritual support care for committed persons

13 who have been diagnosed with a known terminal condition with a

14 life expectancy of 6 months or less. This includes, but is not

15 limited to, assistance with activities of daily living and

16 comfort care.

17  "Peer support" refers to assistance and companionship

18 provided by committed persons who have been trained to offer

19 emotional, social, and practical support to fellow committed

20 persons receiving hospice and palliative care.

21  "Terminal condition" means an incurable or irreversible

22 condition that, without the administration of life-sustaining

23 procedures, will, according to reasonable medical judgment,

24 result in death within a relatively short period of time; or a

25 state of permanent unconsciousness from which, to a reasonable

26 degree of medical certainty, there can be no recovery.
    HB2397 Enrolled           -4-  LRB104 08043 RLC 18089 b

1   (c) Reporting requirement. No later than December 1 of

2 each year, the Department shall prepare a report to be

3 published on its website that contains, at a minimum, the

4 following information about hospice and palliative care in its

5 institutions and facilities during the prior fiscal year:

6   (1) demographic data of committed persons who received

7   hospice and palliative care, separated by the following

8   categories:

9   (A) race or ethnicity;

10  (B) gender;

11  (C) age;

12  (D) primary cause of terminal illness or

13  condition; and

14  (E) length of incarceration prior to receiving

15  end-of-life care;

16  (2) data on the number of committed persons in the

17  Department's hospice and palliative care programs,

18  including the following:

19  (A) the total number of committed persons enrolled

20  in the Department's hospice and palliative care

21  programs;

22  (B) the total number of admissions into and

23  discharges from the Department's hospice and

24  palliative care programs, including the number of

25  committed persons who died while in the program and

26  the number of committed persons who were removed from
    HB2397 Enrolled  -5-  LRB104 08043 RLC 18089 b

1   the program for other reasons; and

2   (C) the number of committed persons denied entry

3   into the Department's hospice and palliative care

4   programs, including any reasons that they were denied;

5   (3) data on the timing of hospice and palliative care

6   programming, including the following:

7   (A) the average length of time that committed

8   persons receive hospice and palliative care; and

9   (B) the average length of time between the

10  diagnosis of a terminal condition and admission into a

11  hospice and palliative care program;

12  (4) the number of committed persons in the custody of

13  the Department who died, separated by the following

14  categories:

15  (A) committed persons who died while receiving

16  hospice and palliative care; and

17  (B) committed persons who died without receiving

18  hospice and palliative care, and the number of such

19  committed persons who died as a result of natural,

20  accidental, suicidal, or homicidal causes;

21  (5) policies and administrative directives of each

22  Department institution and facility regarding the

23  institution of hospice and palliative care. This data

24  shall include the following information:

25  (A) the name of each institution and facility that

26  offers hospice and palliative care services;
    HB2397 Enrolled  -6-            LRB104 08043 RLC 18089 b

1   (B) criteria to be eligible for hospice and

2   palliative care services, both Department-wide and at

3   each institution and facility;

4   (C) a list of the types of hospice and palliative

5   care services that are offered in each institution and

6   facility. This list shall include, but is not limited

7   to, pain management, psychological counseling, peer

8   support, and chaplain services. If available, this

9   list shall also include supportive services offered to

10  family members of committed persons;

11  (D) the accreditation status of the Department's

12  hospice and palliative care programs, if available;

13  (E) the procedures for committed persons in the

14  Department's custody to request an advance directive

15  for health care in each institution and facility;

16  (F) the procedures for health care or legal staff

17  to assist committed persons in completing advance

18  directive instruments; and

19  (G) the procedures for health care providers to

20  implement advance directives for health care in each

21  institution and facility;

22  (6) the staff available for hospice and palliative

23  care. This data shall include the following:

24  (A) the number of specialized staff at each

25  institution and facility, including palliative care

26  physicians, nurses, and social workers;
    HB2397 Enrolled           -7-  LRB104 08043 RLC 18089 b

1   (B) the number of volunteers dedicated to hospice

2   and palliative care, separated by the following

3   categories:

4                    (i) volunteers who are committed persons of

5   the Department;

6                    (ii) volunteers who are not committed persons

7   of the Department; and

8                    (iii) the ratio between the number of staff

9   and the number of patients in the Department's

10  hospice and palliative care programs; and

11  (7) the cost of the Department's hospice and

12  palliative care programs, including the following:

13  (A) the annual costs associated with hospice and

14  palliative care across the Department;

15  (B) the sources of funding for hospice and

16  palliative care services; and

17  (C) the annual costs associated with hospice and

18  palliative care at each Department institution and

19  facility.

20  All such data shall be anonymized to protect the privacy

21 of the committed persons involved in the hospice and

22 palliative care programs.
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