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Illinois General Assembly· HB 1783Governor Approved

ST BD ED-LANGUAGE ASSESSMENT, the official text

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HB1783 Enrolled                     LRB104 09258 LNS 19316 b

1   AN ACT concerning education.

2   Be it enacted by the People of the State of Illinois,

3 represented in the General Assembly:

4   Section 1. Short title. This Act may be cited as the

5 Language Equality Acquisition for Deaf, Hard of Hearing, or

6 DeafBlind Children Act.

7   Section 5. Findings and goal.

8   (a) The General Assembly finds that there is an urgent and

9 substantial need to do all of the following:

10  (1) Develop a State-recognized language needs and

11  monitoring program for deaf, hard of hearing, or DeafBlind

12  children with language and communication developmental

13  milestones to assist parents, guardians, and educators in

14  determining the language and communication needs and goals

15  of deaf, hard of hearing, or DeafBlind children.

16  (2) End language deprivation in children who are deaf,

17  hard of hearing, or DeafBlind through proper assessment,

18  monitoring, and tracking of language and communication

19  developmental milestones.

20  (3) Provide access to primary languages to be used at

21  home, including, but not limited to, American Sign

22  Language, English, or Protactile, all of which are

23  essential in the development of cognition, communication,
    HB1783 Enrolled          -2-  LRB104 09258 LNS 19316 b

1   literacy, and language in deaf, hard of hearing, or

2   DeafBlind children and in enhancing preschool and

3   kindergarten readiness.

4   (4) Maximize resources associated with early

5   intervention services by ensuring deaf, hard of hearing,

6   and DeafBlind children have the necessary language

7   foundation to communicate, learn, and achieve their

8   maximum potential.

9   (5) Enhance deaf, hard of hearing, or DeafBlind,

10  children's independence, linguistic proficiency,

11  productivity, and socialization with peers, family, and

12  the community, as well as maximize the potential for these

13  children to thrive in childhood, adolescence, and

14  adulthood.

15  (b) The General Assembly declares that the goal of this

16 State is for deaf, hard of hearing, or DeafBlind children to

17 enter public and nonpublic schools in this State prepared for

18 learning, able to communicate with peers and staff, and with

19 access to resources to help these children succeed.

20  Section 10. Definitions. As used in this Act:

21  "Advisory committee" means the advisory committee

22 established under Section 25.

23  "American Sign Language" means a complete, visual, and

24 manual sign language with its own grammar and syntax that is

25 used by many deaf or hard of hearing individuals.
    HB1783 Enrolled         -3-        LRB104 09258 LNS 19316 b

1   "Communication" means the process of exchanging

2 information between individuals or groups that involves the

3 transmission of ideas, feelings, or facts from one person, the

4 sender, to another, the receiver, and may be verbal or

5 nonverbal and plays a crucial role in human interaction.

6   "DeafBlind" means concomitant hearing and vision

7 impairments, the combination of which causes such significant

8 communication, developmental, or educational needs that they

9 cannot be accommodated solely for children with deafness or

10 low-vision blindness.

11  "English" means a method of human communication consisting

12 of the use of English words in a structured and conventional

13 way, including spoken English, written English, and English

14 with or without the use of visual or tactile supplements or

15 dual language services.

16  "English literacy" means the ability to read and write in

17 English.

18  "Kindergarten readiness" means language, communication,

19 early reading and math literacy, and social skills development

20 for each language of the home that is consistent with

21 age-related peers by kindergarten.

22  "Language" means the age-appropriate development of human

23 communication, spoken, written, or signed, consisting of the

24 use of words and signs in a structured and conventional way.

25  "Language and communication developmental milestones"

26 means milestones of development measured by validated
    HB1783 Enrolled  -4-        LRB104 09258 LNS 19316 b

1 instruments used to meet the requirements of federal law for

2 the assessment of children from birth to 5 years of age.

3   "Protactile" means the value of touch-based interactions

4 for the purposes of communication for individuals who are

5 DeafBlind that has its own grammar and syntax and that allows

6 for individuals to connect with the world around them and

7 fosters greater independence for those with multisensory

8 impairments.

9   Section 15. Applicability.

10  (a) This Act applies to children from birth to 5 years of

11 age.

12  (b) This Act is subject to appropriation.

13  Section 20. Language needs and monitoring program for

14 deaf, hard of hearing, or DeafBlind children.

15  (a) The Department of Human Services, in consultation with

16 the Illinois School for the Deaf, the Deaf and Hard of Hearing

17 Commission, the Department of Early Childhood, the State Board

18 of Education, and the Department of Public Health, shall

19 establish a language needs and monitoring program for deaf,

20 hard of hearing, or DeafBlind children. The scope of the

21 program shall include language and communication developmental

22 milestones in American Sign Language, English, Protactile, or

23 the primary language used in the home. The purpose of the

24 program is to assess, monitor, and track the language and
    HB1783 Enrolled  -5-                LRB104 09258 LNS 19316 b

1 communication developmental milestones of children who are

2 deaf, hard of hearing, or DeafBlind and develop a resource for

3 use by parents and guardians to monitor and support deaf, hard

4 of hearing, or DeafBlind children's expressive and receptive

5 language acquisition and developmental stages toward English

6 literacy and kindergarten readiness.

7   (b) The resource developed under subsection (a) shall:

8   (1) consider the language and communication

9   developmental milestones recommended by the advisory

10  committee;

11  (2) be appropriate for use, in both content and

12  administration, with deaf, hard of hearing, or DeafBlind

13  children who use American Sign Language, English,

14  Protactile, or the primary language used in the home;

15  (3) include and present evidence-based language and

16  communication developmental milestones for typically

17  developing children, by age range; language and

18  communication development milestones shall be aligned with

19  this State's infant, toddler, preschool-age, and

20  school-age guidelines, as well as federal laws and State

21  standards in English language arts and related programs;

22  (4) be provided in English, American Sign Language,

23  Protactile, and the primary language used in the home for

24  clarity and ease of use by parents, guardians, health care

25  professionals, interventionists, and educators;

26  (5) be consistent with State and federal guidelines on
    HB1783 Enrolled       -6-   LRB104 09258 LNS 19316 b

1   early intervention, identification, diagnosis, and early

2   childhood education;

3   (6) inform parents and guardians of their right to

4   choose their preferred language that will be used to

5   communicate and provide a language-rich learning

6   environment for their child, including English, American

7   Sign Language, Protactile, or the primary language used in

8   the home;

9   (7) inform parents and guardians that they may bring

10  the resource to an individualized family service plan,

11  individualized education program, or federal Section 504

12  plan meeting for purposes of supporting their choices and

13  observations regarding their child's language and

14  communication development; the resource shall include

15  evidence-based and comprehensive information about

16  American Sign Language, English, Protactile, or the

17  primary language used in the home, as well as available

18  services and programs; and

19  (8) make clear that the resource is a checklist of

20  language and communication developmental milestones that

21  has been created from evidence-based resources and

22  completed by a parent or guardian and professionals

23  together and may have similarities and differences from

24  standardized testing presented at an individualized family

25  service plan, individualized education program, or federal

26  Section 504 plan meeting; the parent or guardian shall be
    HB1783 Enrolled    -7-     LRB104 09258 LNS 19316 b

1   made aware that the school district is not required to use

2   the resources, language and communication developmental

3   milestones, or specific assessments in this subsection and

4   subsection (a) that are recommended by the advisory

5   committee for the purpose of developing the individualized

6   family service plan, individualized education program, or

7   federal Section 504 plan.

8   (c) The Department of Human Services, in consultation with

9 the Illinois School for the Deaf, the Deaf and Hard of Hearing

10 Commission, the Department of Early Childhood, the State Board

11 of Education, and the Department of Public Health, shall

12 consult with subject matter experts on the advisory committee

13 in selecting from lists of validated tools or assessments for

14 interventionists and educators to be used in the assessment of

15 language, communication, and preliteracy development for deaf,

16 hard of hearing, or DeafBlind children, in accordance with

17 assessment requirements under the federal Individuals with

18 Disabilities Education Act and Section 10-65 of the Department

19 of Early Childhood Act. The selection of the tools or

20 assessments shall:

21  (1) be in a format that shows language and

22  communication developmental milestones;

23  (2) take into consideration the recommendations of the

24  advisory committee to measure the development of deaf,

25  hard of hearing, or DeafBlind children's expressive and

26  receptive language acquisition and language and
    HB1783 Enrolled      -8-  LRB104 09258 LNS 19316 b

1   communication developmental milestones toward literacy;

2   (3) be selected from a list of tools or assessments

3   used to assess the development of all children; and

4   (4) be appropriate, in both content and

5   administration, for use with deaf, hard of hearing, or

6   DeafBlind children.

7   The tools or assessments may be used, in addition to the

8 assessments required by federal law, by a child's

9 individualized family service plan or individualized education

10 program, as applicable, to track a deaf, hard of hearing, or

11 DeafBlind child's progress and to establish or modify an

12 individualized family service plan or individualized education

13 program. Children with federal Section 504 plans shall be

14 assessed to ensure appropriate services are provided. The

15 tools or assessments may reflect the recommendations of the

16 advisory committee.

17  (d) The Department of Human Services, in consultation with

18 the Illinois School for the Deaf, the Deaf and Hard of Hearing

19 Commission, the Department of Early Childhood, the State Board

20 of Education, and the Department of Public Health, shall

21 disseminate the resource developed under subsection (a) to the

22 parents or guardians of deaf, hard of hearing, or DeafBlind

23 children and, pursuant to federal law, the Department of Human

24 Services shall disseminate the tools and assessments selected

25 under subsection (c) to early intervention entities and school

26 districts for consideration in the development and
    HB1783 Enrolled    -9-  LRB104 09258 LNS 19316 b

1 modification of individualized family service plans,

2 individualized education programs, and federal Section 504

3 plans.

4   (e) The Department of Human Services shall make available

5 to parents and guardians materials and training on the tools,

6 assessments, and resources for deaf, hard of hearing, or

7 DeafBlind children.

8   (f) Beginning on July 1, 2028, an annual language

9 assessment shall be offered to the parent or guardian of each

10 child who is deaf, hard of hearing, or DeafBlind, in

11 accordance with the federal Individuals with Disabilities

12 Education Act and Section 10-65 of the Department of Early

13 Childhood Act. The language assessment shall be administered

14 by a credentialed or licensed professional who meets the

15 qualifications established by the test developer and

16 demonstrates proficiency in the language being assessed.

17  A deaf, hard of hearing, or DeafBlind newborn child shall

18 be screened by the time the child turns one month old,

19 diagnosed no later than 3 months of age, and referred to an

20 early intervention program by the time the child turns 6

21 months old. Following the referral to an early intervention

22 program, the initial evaluation, assessment, and

23 individualized family service plan meeting shall occur within

24 45 days. Services shall begin no later than 30 days after the

25 consent of the parent or guardian is obtained as required by

26 the federal Individuals with Disabilities Education Act and
    HB1783 Enrolled          - 10 - LRB104 09258 LNS 19316 b

1 Section 10-65 of the Department of Early Childhood Act.

2   A deaf, hard of hearing, or DeafBlind child with late

3 onset hearing loss shall be diagnosed no later than 3 months

4 after a suspected hearing loss and immediately referred to

5 services after diagnosis.

6   If a deaf, hard of hearing, or DeafBlind child is referred

7 to an early intervention program, a formal assessment shall be

8 offered, in person or virtually, by a developmental

9 therapist-hearing or discipline-specific credentialed

10 provider upon program entry and at yearly intervals, in

11 accordance with the federal Individuals with Disabilities

12 Education Act and Section 10-65 of the Department of Early

13 Childhood Act. Developmental therapists-hearing and

14 discipline-specific credentialed providers shall be expected

15 to refer out as appropriate for children whose primary

16 language is American Sign Language or Protactile to ensure

17 assessments of children are completed by individuals with the

18 ability to accurately conduct such assessments.

19  A deaf, hard of hearing, or DeafBlind child entering

20 school with an individualized education program or federal

21 Section 504 plan shall receive a formal assessment implemented

22 by a licensed teacher of the deaf or discipline-specific

23 licensed teacher. Licensed teachers of the deaf or

24 discipline-specific licensed teachers shall be expected to

25 refer out as appropriate for children whose primary language

26 is American Sign Language or Protactile to ensure assessments
   HB1783 Enrolled  - 11 - LRB104 09258 LNS 19316 b

1 of children are completed by those individuals with the

2 ability to accurately conduct such assessments.

3  The advisory committee shall recommend the criteria that

4 may be used to identify those individuals who are qualified to

5 conduct accurate American Sign Language or Protactile

6 assessments.

7  In accordance with the federal Individuals with

8 Disabilities Education Act and Section 10-65 of the Department

9 of Early Childhood Act, if a deaf, hard of hearing, or

10 DeafBlind child does not demonstrate progress in expressive

11 and receptive language skills, the child's individualized

12 family service plan, individualized education program, or

13 federal Section 504 plan team shall be responsible for

14 identifying areas not meeting or progressing toward the

15 language and communication developmental milestones. Data

16 collected on children with disabilities in addition to hearing

17 loss, nonnative English speakers, and children with unilateral

18 or bilateral hearing loss shall be extrapolated and analyzed

19 independently to ensure data efficacy is not compromised. The

20 individualized family service plan, individualized education

21 program, or federal Section 504 plan team, including the

22 parents or guardians, shall consider specific strategies,

23 services, and programs to assist the child's success toward

24 learning the child's parent's or guardian's preferred

25 language. A follow-up meeting shall be scheduled within 30 to

26 60 days or as deemed appropriate by the individualized family
    HB1783 Enrolled  - 12 - LRB104 09258 LNS 19316 b

1 service plan, individualized education program, or federal

2 Section 504 plan team to determine the effects of the

3 recommendations.

4   (g) All activities in implementing this Section shall be

5 consistent with federal and State law regarding the education

6 of children with disabilities and the privacy of pupil

7 information.

8   Section 25. Advisory committee.

9   (a) An advisory committee on language needs and monitoring

10 shall be established. The advisory committee shall be composed

11 of subject matter experts, consumers, and parents or guardians

12 supporting deaf, hard of hearing, or DeafBlind children.

13  (b) The advisory committee shall consist of all of the

14 following voting members, each appointed by the Secretary of

15 Human Services, in consultation with the Illinois School for

16 the Deaf and the Deaf and Hard of Hearing Commission:

17  (1) One parent or guardian of a child who (i) is 18

18  years of age or younger at the time of the appointment,

19  (ii) is deaf, hard of hearing, or DeafBlind, and (iii)

20  uses the dual languages of American Sign Language and

21  English.

22  (2) One parent or guardian of a child who (i) is 18

23  years of age or younger at the time of the appointment,

24  (ii) is deaf, hard of hearing, or DeafBlind, and (iii)

25  uses primarily spoken English, without sign support.
    HB1783 Enrolled    - 13 - LRB104 09258 LNS 19316 b

1   (3) One expert on language outcomes for deaf and hard

2   of hearing children who use American Sign Language and the

3   English language.

4   (4) One licensed teacher of deaf and hard of hearing

5   children from a spoken English-only school or one expert

6   on language outcomes for deaf and hard of hearing children

7   using spoken English, with or without visual supplements.

8   (5) One licensed teacher of deaf and hard of hearing

9   children whose expertise is in curriculum and instruction

10  in American Sign Language and English, with or without

11  visual supplements, or one licensed teacher of deaf and

12  hard of hearing children whose expertise is in American

13  Sign Language and English language assessments, with or

14  without visual supplements.

15  (6) A psychologist with expertise in assessing deaf

16  and hard of hearing children who use or are fluent in

17  American Sign Language and English.

18  (7) One developmental therapist-hearing who works with

19  deaf and hard of hearing infants and toddlers who use the

20  dual languages of American Sign Language and the English

21  language.

22  (8) One licensed speech-language pathologist who has

23  expertise in working with children and who uses listening

24  and spoken language methodologies.

25  (9) One licensed speech-language pathologist who has

26  expertise in working with children who use American Sign
    HB1783 Enrolled        - 14 - LRB104 09258 LNS 19316 b

1   Language.

2   (10) One deaf person who represents the deaf

3   community.

4   (11) One DeafBlind individual, specialist, or educator

5   whose expertise is in DeafBlind advocacy or education.

6   (12) One licensed teacher of deaf and hard of hearing

7   children who also has significant experience in working

8   with deaf, hard of hearing, or DeafBlind children with

9   other educational disabilities.

10  (13) One licensed pediatric audiologist with working

11  knowledge of American Sign Language and English.

12  (c) The advisory committee shall consist of all of the

13 following ex officio, nonvoting members:

14  (1) The State Superintendent of Education or the State

15  Superintendent's designee.

16  (2) The Director of the Deaf and Hard of Hearing

17  Commission or the Director's designee.

18  (3) The Secretary of Early Childhood or the

19  Secretary's designee.

20  (4) The Director of Public Health or the Director's

21  designee.

22  (5) The Superintendent of the Illinois School for the

23  Deaf or the Superintendent's designee.

24  (6) The Secretary of Human Services or the Secretary's

25  designee.

26  The ex officio, nonvoting members shall provide support to
    HB1783 Enrolled         - 15 - LRB104 09258 LNS 19316 b

1 the advisory committee.

2   (d) The Secretary of Human Services, in consultation with

3 the Illinois School for the Deaf and the Deaf and Hard of

4 Hearing Commission, shall select a chairperson from among the

5 voting appointed members. The Department of Human Services

6 shall call an inaugural meeting of the advisory committee

7 within 120 days of the effective date of this Act. The advisory

8 committee may meet at any time in person or virtually at the

9 call of the chairperson.

10  (e) Members of the advisory committee shall serve without

11 compensation or travel reimbursement. Communication access

12 accommodations, such as interpreters and captioning, must be

13 provided at all meetings to ensure full participation.

14  (f) A quorum of the advisory committee shall consist of a

15 simple majority of the members of the advisory committee,

16 voting and nonvoting. All actions and recommendations of the

17 advisory committee must be approved by an advisory committee

18 vote of the members appointed.

19  (g) Any vacancy in the advisory committee shall be filled

20 in the same manner as the original appointment.

21  (h) The Department of Human Services shall provide the

22 advisory committee with administrative support.

23  (i) On or before December 31, 2027, the advisory committee

24 shall submit to the Department of Human Services specific,

25 recommended action plans, timelines, anticipated costs, and

26 proposed rules necessary to fully implement language and
    HB1783 Enrolled          - 16 - LRB104 09258 LNS 19316 b

1 communication tools, assessments, and resources. The advisory

2 committee may:

3   (1) solicit input from experts on the selection of

4   language and communication developmental milestones

5   related to the resources, tools, and assessments;

6   (2) review and monitor the use of language and

7   communication assessments for children who are deaf, hard

8   of hearing, or DeafBlind;

9   (3) recommend criteria for qualified American Sign

10  Language and English experts who can support the initial

11  and periodic individualized family service plan,

12  individualized education program, or federal Section 504

13  plan team meetings; and

14  (4) recommend methods for documenting, monitoring, and

15  submitting to all State agencies, child-specific

16  information on language and communication assessment

17  results, language and communication developmental

18  milestones, assessment tools, and the progress of a child.

19  The periodic assessment results and longitudinal progress

20 ultimately implemented by the Department of Human Services,

21 considering the recommendations of the advisory committee and

22 in consultation with the Deaf and Hard of Hearing Commission,

23 the Department of Early Childhood, the State Board of

24 Education, and the Department of Public Health, shall be made

25 available on the child-specific level to each State agency and

26 to the parent or guardian of the child, teachers, and other
    HB1783 Enrolled         - 17 - LRB104 09258 LNS 19316 b

1 professionals involved in the early intervention and education

2 of the child.

3   (j) The specific recommended action plans and proposed

4 rules developed by the advisory committee shall include, but

5 are not limited to, all of the following:

6   (1) Language and communication assessments that

7   include child-specific data collection and timely tracking

8   in a statewide data system of a child's development to

9   provide information about the child's receptive and

10  expressive language compared to the child's typically

11  developing, age-related peers who are not deaf, hard of

12  hearing, or DeafBlind.

13  (2) Language and communication assessments conducted

14  in accordance with the federal Individuals with

15  Disabilities Education Act and Section 10-65 of the

16  Department of Early Childhood Act, as well as standardized

17  procedures and timelines to monitor and track language and

18  communication developmental milestones in both receptive

19  and expressive language acquisition by language and

20  communication    developmental           milestones  toward

21  kindergarten readiness for all children who are deaf, hard

22  of hearing, or DeafBlind.

23  (3) Language and communication assessments delivered

24  in American Sign Language, English, Protactile, or the

25  primary language used in the home that have been validated

26  for the specific purposes for which each assessment is
    HB1783 Enrolled              - 18 - LRB104 09258 LNS 19316 b

1   used and appropriately normed.

2   Language and communication assessments shall be

3 administered by individuals who are proficient and have

4 expertise in the language and communication developmental

5 stages of American Sign Language, English, Protactile, or the

6 primary language used in the home.

7   Language and communication assessment results may be used

8 to guide individualized family service plan, individualized

9 education program, or federal Section 504 plan teams for the

10 purpose of reviewing a child's progress in language and

11 communication development.

12  Language and communication assessment results shall be

13 reported to the parent or guardian of a child. Child-specific

14 data, in accordance with federal and State laws, shall be

15 reported to the Department of Human Services, which shall

16 ensure it is available to appropriate staff at the Deaf and

17 Hard of Hearing Commission, the Department of Early Childhood,

18 the State Board of Education, and the Department of Public

19 Health. One designated State agency shall publish annual

20 reports related to this Act.

21  Language and communication assessment results shall be

22 reported annually to the child's individualized family service

23 plan, individualized education program, or federal Section 504

24 plan team to assist the individualized family service plan,

25 individualized education program, or federal Section 504 plan

26 team in ensuring that appropriate language and communication
    HB1783 Enrolled  - 19 - LRB104 09258 LNS 19316 b

1 development remains a priority and continues to be monitored.

2   (k) This Section is repealed on January 1, 2028.

3   Section 30. Joint action plan on deaf, hard of hearing, or

4 DeafBlind children. On or before July 1, 2028, the Department

5 of Human Services, in consultation with the Illinois School

6 for the Deaf, the Deaf and Hard of Hearing Commission, the

7 Department of Early Childhood, the State Board of Education,

8 and the Department of Public Health, shall publish a joint

9 action plan that considers the recommendations of the advisory

10 committee and may propose legislation and rules necessary to

11 implement this Act. The joint action plan may include

12 recommendations on all of the following:

13  (1) Evidence-based and research-supported tools to

14  help identify deaf, hard of hearing, or DeafBlind

15  children.

16  (2) The development of evidence-based resources and

17  training for parents, guardians, health care providers,

18  interventionists, and educators about State resources

19  available to deaf, hard of hearing, or DeafBlind children

20  of school age.

21  (3) Ways to connect deaf, hard of hearing, or

22  DeafBlind adults with families supporting children in need

23  of support.

24  (4) Training and resources for physicians and other

25  health care providers on how to connect deaf, hard of
   HB1783 Enrolled  - 20 - LRB104 09258 LNS 19316 b

1  hearing, or DeafBlind children and their parents or

2  guardians to resources and support.

3  Section 35. Reporting. On or before January 1, 2030 or 2

4 years after the tools and assessments under Section 20 are

5 implemented, whichever is later, the Department of Human

6 Services, in consultation with the Illinois School for the

7 Deaf, the Deaf and Hard of Hearing Commission, the Department

8 of Early Childhood, the State Board of Education, and the

9 Department of Public Health, shall publish aggregate

10 deidentified data on (i) the number of children from birth to 3

11 years of age who have been diagnosed as deaf, hard of hearing,

12 or DeafBlind, (ii) the number and scope of individualized

13 education programs written for children aged 3 to 5 years who

14 are enrolled in public preschool programs and who are deaf,

15 hard of hearing, or DeafBlind, and (iii) the number and scope

16 of individualized education programs for children in

17 kindergarten and first grade who are deaf, hard of hearing, or

18 DeafBlind. The Department of Human Services, in consultation

19 with the Illinois School for the Deaf, the Deaf and Hard of

20 Hearing Commission, the Department of Early Childhood, the

21 State Board of Education, and the Department of Public Health,

22 may add additional data reporting recommendations. The data

23 must be shared within the requirements of the federal Family

24 Educational Rights and Privacy Act of 1974, the Illinois

25 School Student Records Act, and the Personal Information
         HB1783 Enrolled  - 21 - LRB104 09258 LNS 19316 b
1 Protection Act.

2   Section 40. Information sharing.

3   (a) For the purposes of documentation and the coordination

4 of medical care, intervention, or educational services, the

5 Department of Human Services, the Illinois School for the

6 Deaf, the Deaf and Hard of Hearing Commission, the Department

7 of Early Childhood, the State Board of Education, and the

8 Department of Public Health may, after obtaining consent,

9 share screening, diagnosis, intervention, education,

10 assessment, and monitoring information with other State

11 agencies or a child's parent or guardian.

12  (b) For the purposes of documentation and the coordination

13 of medical care, intervention, or educational services, the

14 Department of Human Services, the Illinois School for the

15 Deaf, the Deaf and Hard of Hearing Commission, the Department

16 of Early Childhood, the State Board of Education, and the

17 Department of Public Health may, after obtaining consent,

18 share screening, diagnosis, intervention, education,

19 assessment, and monitoring information in accordance with

20 applicable State and federal laws. Medical care facilities,

21 health care providers, early interventionists, local health

22 departments, and the University of Illinois at Chicago

23 Division of Specialized Care for Children may submit relevant

24 information or reports about newborn, infant, and child

25 screening, diagnosis, intervention, education, assessment, or
    HB1783 Enrolled  - 22 - LRB104 09258 LNS 19316 b

1 follow-up services for those services provided. To the extent

2 practicable, reporting shall be done as soon as possible after

3 the date of service or an inquiry from a State agency. Reports

4 shall be in a format determined by the reporting State agency.

5   (c) The Department of Human Services, in consultation with

6 the Illinois School for the Deaf, the Deaf and Hard of Hearing

7 Commission, the Department of Early Childhood, the State Board

8 of Education, and the Department of Public Health, may

9 exchange, in adherence with confidentiality and nondisclosure

10 requirements, child-specific data for children who are deaf,

11 hard of hearing, or DeafBlind only in order to support

12 children and their families and assist in the transition and

13 continuity of care and for the purposes of this Act.

14  (d) Except in cases of willful or wanton misconduct, no

15 health care provider, hospital, or medical facility acting in

16 compliance with this Section is civilly or criminally liable

17 for any act performed in compliance with this Section,

18 including furnishing information required under this Section.

19  Section 90. Rulemaking. The Department of Human Services,

20 in consultation with the Illinois School for the Deaf, the

21 Deaf and Hard of Hearing Commission, the Department of Early

22 Childhood, the State Board of Education, and the Department of

23 Public Health, may adopt any rules necessary to implement this

24 Act.

25  Section 99. Effective date. This Act takes effect upon
         HB1783 Enrolled  - 23 - LRB104 09258 LNS 19316 b
1 becoming law.
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